Sunday 27 January 2019
I have been fighting the NHS for 10 years - it should never, ever have been like this. Not for us, not for anyone.
As I said to my H last night: "I would have been surprised if (a) the NHS had offered me further help for C-PTSD, and (b) if that help had been effective evidence-based treatment over a sufficient period of time for me to recover rather than being discharged after a handful of sessions way, way too soon. It shouldn't be like this, for anyone suffering from mental health issues whether that's an eating disorder like anorexia or bulimia or a condition like Complex Post-Traumatic Stress Disorder.
Friday 25 January 2019
Hang on a mo, NHS... Let's see if I've got this right from the letter I've received this morning... Because I still have most of the Complex (or Chronic) Post-Traumatic Stress Disorder (C-PTSD) symptoms, despite having had 'three full sessions of therapy' over the years, yet I still 'feel the same', and because I still get 'triggered by Ben' (not his fault, just that certain noises, actions, etc trigger me because I have C-PTSD as a result of the years spent battling with his anorexia and, ironically, the NHS), NHS mental health services do 'not feel further therapy would be helpful at this point' and are therefore 'discharging [me] from the service'.
Tuesday 22 January 2019
10 years is a milestone in a life and, in our family, the past 10 years brought with them a horror that we couldn't have imagined in our worst nightmares. 10 years ago this spring, in 2009, my son began to exhibit worrying symptoms, although back then we had no idea that these were a prelude to a full-blown eating disorder like anorexia. Of course we didn't. We had no idea that boys get eating disorders just like girls.
Monday 21 January 2019
10 years ago this coming autumn I was cramming up on eating disorders and evidence-based treatment in order to fight for my 15-year old son to get successful treatment for his escalating anorexia. I quickly realised that the NHS wasn't going to rush this thing through despite the fact that I was rapidly learning how deadly an eating disorder can be, especially if left untreated for a lengthy period. It was only when, in the early spring that followed, my son's pulse plummeted to 29bpm and he was rushed into hospital, that NHS mental health services finally agreed to see him for eating disorder treatment. In other words, it appeared that his life had to be at risk for anything to be done.