In September 2015 I was toying with the idea of writing a sequel to my book Please eat... A mother's struggle to free her teenage son from anorexia and I wrote this in the Diaro app:
The book will be about me
Rather than my son. Mainly. How I coped (or didn't) with getting my life back. The blips we had, my worries about his weight and
relapse. He is not the person he used to be and it's upsetting. But might he have been this person regardless?
At the time I was obviously wondering if 'almost there' was where my son would always be and that he'd never get back to being the person he was before the anorexia hijacked his life.
I was worried that he would never get the weight back on him, never eat 100% normally, never stop counting calories and weighing out food, and so on.
It's a question I often see from parents on the Around The Dinner Table Forum. This wondering if we're asking too much in seeking full and unconditional recovery from the eating disorder and that, if some (less enlightened) treatment teams imply that some young people always stop short of the finish line and that this is the best we can expect, they must somehow be right.
Yet we have battled to get our child this far; we owe it to them to help them recover fully and get their lives back.
My son was told "We're happy to settle for 'good enough' if you are, Ben" and that "Some young people choose to remain at a low weight because they find it easier to cope with".
When I heard these words my whole being screamed out: "Noooooo!!!!!"
Yet, by September 2015, six years after Ben's eating disorder first emerged, I was still saying things like: "My son is 95% recovered." I simply wasn't able to say the words "fully recovered" despite enormous advances having been made and despite Ben being 'almost there'.
I would say that it took a further two years, almost to the present day, for me to look at Ben and think "Yes, this is what full recovery looks like". The flesh was back on his bones, the light was back in his eyes, the smile was back on his face and the food was still being eaten properly and normally.
I believe that full recovery from an eating disorder is possible and that families should NEVER be told that they may have to settle for 'second best'.
That limbo-land where the finish line is in sight but where they stop short.
If we - treatment team, parents and the patient themselves - have fought tooth and nail to get this far, why the hell should we stop here?
But that final push wasn't solely due to my encouragement and support; it was almost entirely down to my son who refused to give up and pushed himself towards and across that line, and began to live life as it should be lived: to the full.
Without any signs of the eating disorder.
Well done, Ben.
Want information on eating disorders in boys? Worried your son has an eating disorder? What are the signs of eating disorders in boys? In 2009 my 15-year-old son developed anorexia. Now aged 31 and with a MSc in Psychology he is recovered & working in mental health using his experiences to help others. I help to raise awareness of eating disorders in boys, point parents to helpful resources & talk about how eating disorders can traumatise families.
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A very inspirational article Bev. We came near to that finish line with my daughter...and I was was told to back off and stop being so controlling. I was judged. I stated time and again, she wasn't ready. But they all convinced me I was the problem. So I stepped back. She self harmed and 2 years on, she is back at her lowest weight and completely gripped by Anorexia. We are living the hell again. I have no time to be over indulgent and wonder 'what if I had said....what if we had done.......'. We are where we are now and I have to face it again. And it's crap for me. But it's,he'll for my girl. And so unfair. When will the professionals believe us? Thank you for your validating article.
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